Hospice palliative care in Alberta

Hospice palliative care has its roots in Alberta from community initiatives often named Palliative Care Councils or Palliative Care Societies. Within these initiatives, many citizens raise money for implementing palliative care rooms within their community hospitals or purchasing equipments (e.g., beds and patient controlled analgesia devices) contributing to a more comfortable death for their loved ones. In addition to these tremendous community efforts, key developments have fashioned the hospice palliative care landscape in Alberta.

Key milestones
The Palliative Care Association of Alberta, a provincial affiliate of the Canadian Hospice Palliative Care Association, was incorporated in 1990 to advocate for equitable and accessible hospice palliative care programs or services in the province. Currently, the organization has a membership of over 200 health care professionals from across the province with multidisciplinary representation.

Figure 1: Key milestones
Year
Accomplishment
2000
1999
1998
ACB Palliative Care Network Initiative
1995-96
Tertiary programs in Edmonton and Calgary
1994
Seventeen RHAs assume the mandate to provide care within their regions.
1993
Alberta Health Palliative Care Policy Framework
1990
Palliative Care Association of Alberta

In 1993, Alberta Health released Palliative care: A policy framework, which acknowledged the need for a coordinated continuum of care and support services for palliative patients and their families. It indicated that palliative care should be provided according to the resources available within the health care system. In 1994, with the beginning of the regionalization process, each regional health authority was mandated to determine the needs for hospice palliative care in its region. Consistent with the provincial policy framework, Alberta Health and Wellness committed to give funding priority to enhancing community-based palliative care services that allow the individual to be cared for at home. This is aligned with the Coordinated Home Care Program Regulation (amended in 1991), which exempts palliative care clients from the $3,000.00 limit for home care services. Priority was also given to improving the coordination of programs and services.

In 1995 and 1996, the tertiary palliative care programs in Edmonton and Calgary were established, followed by the development of other regional palliative care programs and services in the Chinook, David Thompson, East Central and Lakeland regional health authorities. In 1998, ACB implemented the Palliative Care Network Initiative, renamed the Hospice Palliative Care Network in 2003.

In 1999, the provincial government adopted the Alberta Palliative Care Drug Program. The program requires the patient to pay 30 per cent of the cost, to a maximum of $25.00, for each eligible palliative drug prescribed. When the patient has paid $1,000.00 towards the cost of eligible prescription drugs, Alberta Health and Wellness will cover 100 per cent of further eligible costs. The program defines palliative patients as follows:

"Palliative refers to patients who have been diagnosed by a physician as being in the end stage of a terminal illness or disease, are aware of their diagnosis and have made a voluntary informed decision related to resuscitation, and for whom the focus of care is palliation and not treatment aimed at a cure."

In the year 2000, ACB established the Palliative Care Research Initiative, funded by the Alberta Cancer Foundation. On August 1, 2003, the Nursing Homes Operation Regulation was amended to reflect new long-term care accommodation charges. A section was also added to the regulation stating that "if a resident is admitted to a nursing home for the purpose of receiving palliative care or sub-acute care, the operator shall not charge that resident an accommodation charge."

What is hospice palliative care?
How to develop a hospice palliative care program
Current activities of the Hospice Palliative Care Network
Hospice palliative care resources

 

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